ZERO PROSTATE CANCER - GuideStar Profile
PLATINUM2024

ZERO PROSTATE CANCER

Alexandria, VA   |  https://zerocancer.org/

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ZERO PROSTATE CANCER

EIN: 59-3400922


Mission

ZERO Prostate Cancer is the leading national nonprofit with the mission to end prostate cancer and help all who are impacted. ZERO advances research, provides support, and creates solutions to achieve health equity to meet the most critical needs of our community.

Ruling year info

1998

President & CEO

Courtney Bugler

Main address

201 N Union Street Mailbox 110

Alexandria, VA 22314 USA

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Formerly known as

National Prostate Cancer Coalition

ZERO - The Project to End Prostate Cancer

ZERO - The End of Prostate Cancer

EIN

59-3400922

Subject area info

Health

Cancers

Population served info

Men and boys

NTEE code info

Cancer (G30)

Alliance/Advocacy Organizations (E01)

Ambulatory Health Center, Community Clinic (E32)

What we aim to solve

SOURCE: Self-reported by organization

In the United States of America, one in nine men will be diagnosed with prostate cancer in his lifetime. This year alone, more than 31,000 men will die from the disease. We are aiming to end prostate cancer and create Generation ZERO - the first generation of men free from prostate cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Support

ZERO Prostate Cance's patient navigation program, ZERO360, is a free service to help patients access benefits they are entitled to, find supplemental insurance, locate financial resources from charitable and other organizations, and find emotional support. With ZERO360, patients can receive assistance for finances such as utilities, travel and lodging for appointments, medication, and more.

ZERO believes in the importance of peer-to-peer support programs to help improve mental health outcomes for men diagnosed with prostate cancer and their loved ones. Peer-to-peer support programs at ZERO come in multiple forms including online and location specific. These groups allow men and caregivers affected by prostate cancer to gain emotional support by providing a safe place to discuss concerns, feelings and hardships experienced due to prostate cancer.

Population(s) Served
Men and boys

Through our education and awareness initiatives, ZERO educates and supports men and families across the nation. ZERO provides comprehensive educational resources through our website, www.zerocancer.org, monthly electronic newsletter, podcast, and other educational programming including webinars, videos, fact sheets, and brochures. Through the ZERO Prostate Cancer Run/Walk series – the largest men’s health event series in the nation – ZERO activates local communities and raises critical funds and awareness. Additionally, we reach men and families through our endurance and golf event series. Through the ZERO cancer Research Fund, we provide grants toward promising research that will accelerate new treatment options and distinguish aggressive from indolent disease.

Population(s) Served
Men and boys

ZERO has a strong presence on Capitol Hill and in local communities across the nation, advocating on behalf of prostate cancer patients and survivors for access to care and new treatment options. Every year, we bring dedicated advocates to Washington, D.C. to collaborate and share their prostate cancer stories with their legislators.

Population(s) Served
Men and boys

ZERO directly supports cutting-edge research that offers the best return on investment, with a track record of expediting life-saving treatments from the laboratory to patients.

Population(s) Served
Men and boys

Where we work

Awards

4 Star Rating 2021

Charity Navigator

4 Star Rating 2022

Charity Navigator

Number of participants attending course/session/workshop

This metric is no longer tracked.
Totals By Year
Related Program

Education & Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In addition to virtual webinars, ZERO Prostate Cance has a yearly summit to educate attendees about prostate cancer diagnosis, treatments, survivorship, and advocacy.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

ZERO — The End of Prostate Cancer is the leading national nonprofit with the mission to end prostate cancer. Losing a man we love every 17 minutes to prostate cancer is unacceptable. We envision a future with zero prostate cancer deaths and an end to pain and suffering from the disease. We are uniting men and families impacted by the disease to make ending it a national priority. By advancing research, improving lives, and inspiring action, we're building Generation ZERO, the first generation of men free from prostate cancer.

--Research - ZERO serves to protect and grow the largest resource of prostate cancer research funding in the nation. Now infusing $110M in research grants annually, the Department of Defense's Prostate Cancer Research Program (PCRP) has generated three new treatments for late-stage disease and a new genomic tool in the last six years. ZERO spearheaded the creation of the program 20 years ago and within the past year, grew the program by $10M by hosting the annual ZERO Prostate Cancer Summit - where passionate patients, survivors, family members, and loved ones gather in Washington, D.C. to fight for making prostate cancer research and access to care a priority within our federal government.
--Local Impact - Our Summit serves as a catalyst and helps drive action beyond D.C. back in local communities year-round. ZERO Chapters are building vibrant communities of advocates, activists, and volunteers - all champions who come together in the fight against prostate cancer. Established in several regions around the country, ZERO's Chapters are part of the fabric of these communities - offering education and support. We host our national ZERO Prostate Cancer Run/Walk, the largest men's health event series in America, in 40 cities across the country. Prostate cancer has a 99 percent survival rate when caught early and each event raises significant awareness and funds local research, education, and support programs. ZERO has granted more than $10M to support local organizations that work tirelessly to end prostate cancer.
--Support - Ending prostate cancer also means stopping the pain and suffering endured by millions of patients and their families. Fighting cancer is difficult enough. No man should also have to fight for adequate and affordable care. ZERO provides support programs, such as ZERO360, MENtor, ZERO Connect and more. These programs help alleviate the often devastating medical, financial, and emotional impacts that come with a prostate cancer diagnosis through direct assistance, case management, and community building. ZERO supports community partners to host free testing programs and manages a nationwide testing database while operating a patient navigator program where case managers give each patient comprehensive assistance.

--Research - With a vast and diverse network of cause champions, ZERO matches patients, doctors, researchers, and government agencies together to better understand the importance of research on improving health outcomes for the disease; assisting to direct research grants appropriately.
--Local Impact - The ZERO Prostate Cancer Run/Walk is a friendly welcome into local communities dedicated to raising awareness for prostate cancer. We invite those impacted by the disease to take an active role in each community through volunteerism at health fairs, mentoring newly diagnosed patients, and educating their networks about early detection. Our volunteers strive to be ZERO Champions - community leaders tasked with raising awareness and recruiting advocates.
--Support - With more than 80 percent of men saying they needed more help at diagnosis and 40 percent of patients not even knowing what stage of the disease they're in, ZERO launched the ZERO360: Comprehensive Patient Support program to provide free, customized assistance to men with prostate cancer. This unique program, the only case management program exclusively for men with prostate cancer, helps patients overcome access to care obstacles and understand their disease better. In complement to ZERO360, the organization, with its expert staff and medical advisory board, serves as a powerful and comprehensive resource for information from diagnosis to survivorship. Other ZERO programs, such as MENtor and ZERO Connect aim to build community and dialogue around this awful disease. Further, we invest in a variety of content to appeal to different audiences with videos, webinars, social media, brochures, fact sheets, e-newsletters, and podcasts.

With the hard work and passion from our champions, we have made amazing progress by reducing prostate cancer deaths by 35 percent since ZERO was founded in 1997 and tripled the relative 15-year survival rate to 76 percent.
Specifically, ZERO has:
-- Led advocacy efforts to create and infuse more than $1.5B in research funding for the Prostate Cancer Research Program (PCRP), which has generated three life-changing treatments for men living with advanced disease as well as a new genetic diagnosis profile to determine the status of aggressive disease.
-- Successfully fought for an additional $10M in PCRP funding for 2018 for a total of $110M, only the second increase since 2001.
-- Provided more than 50,000 patients with direct assistance to fight prostate cancer.
-- Launched and rapidly grew the ZERO Prostate Cancer Run/Walk into the largest men's health event series in the country with 40 events annually in fewer than 10 years.
-- Tested more than 140,000 men for free so they can know their risk.
-- Worked with the United States Preventive Services Task Force (USPSTF) to update its “D" recommendation on prostate cancer screening to a “C" which advises men to have a conversation with their doctor about the benefits and harms of prostate cancer screening.
-- Recruited and worked with dozens of partners, celebrities, key leaders, and communities to make prostate cancer a federal priority; prompting a national dialogue about the disease that engages families to take action.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2023 info

SOURCE: IRS Form 990

4.48

Average of 3.48 over 10 years

Months of cash in 2023 info

SOURCE: IRS Form 990

0.7

Average of 2.3 over 10 years

Fringe rate in 2023 info

SOURCE: IRS Form 990

21%

Average of 17% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

ZERO PROSTATE CANCER

Revenue & expenses

Fiscal Year: Apr 01 - Mar 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

ZERO PROSTATE CANCER

Balance sheet

Fiscal Year: Apr 01 - Mar 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

ZERO PROSTATE CANCER

Financial trends analysis Glossary & formula definitions

Fiscal Year: Apr 01 - Mar 31

SOURCE: IRS Form 990 info

This snapshot of ZERO PROSTATE CANCER’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2018 2019 2020 2022 2023
Unrestricted surplus (deficit) before depreciation $377,717 $848,683 -$389,346 $2,261,258 -$1,496,679
As % of expenses 6.5% 13.4% -25.6% 30.8% -14.5%
Unrestricted surplus (deficit) after depreciation $274,754 $790,332 -$396,680 $2,207,091 -$1,539,996
As % of expenses 4.6% 12.3% -25.9% 29.9% -14.8%
Revenue composition info
Total revenue (unrestricted & restricted) $6,317,424 $7,138,974 $1,308,253 $10,066,484 $9,365,841
Total revenue, % change over prior year 24.4% 13.0% -81.7% 0.0% -7.0%
Program services revenue 5.8% 5.0% 1.8% 0.4% 0.5%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 0.7% 1.0% 1.0% 1.3% 2.1%
Government grants 0.0% 0.0% 0.0% 6.9% 1.1%
All other grants and contributions 93.5% 93.7% 97.4% 89.0% 94.7%
Other revenue 0.0% 0.3% -0.3% 2.4% 1.7%
Expense composition info
Total expenses before depreciation $5,834,288 $6,348,492 $1,523,050 $7,338,881 $10,343,918
Total expenses, % change over prior year 17.5% 8.8% -76.0% 0.0% 40.9%
Personnel 39.7% 48.2% 55.7% 66.5% 60.4%
Professional fees 10.4% 12.7% 9.4% 11.1% 13.8%
Occupancy 3.0% 2.8% 14.3% 2.5% 1.7%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 17.6% 5.9% 0.0% 2.0% 4.3%
All other expenses 29.2% 30.3% 20.6% 17.8% 19.8%
Full cost components (estimated) info 2018 2019 2020 2022 2023
Total expenses (after depreciation) $5,937,251 $6,406,843 $1,530,384 $7,393,048 $10,387,235
One month of savings $486,191 $529,041 $126,921 $611,573 $861,993
Debt principal payment $0 $0 $0 $563,351 $0
Fixed asset additions $0 $0 $54,859 $0 $232,086
Total full costs (estimated) $6,423,442 $6,935,884 $1,712,164 $8,567,972 $11,481,314

Capital structure indicators

Liquidity info 2018 2019 2020 2022 2023
Months of cash 0.6 0.5 1.1 1.8 0.7
Months of cash and investments 6.6 6.7 24.4 12.1 7.6
Months of estimated liquid unrestricted net assets 3.9 5.1 17.7 10.3 5.3
Balance sheet composition info 2018 2019 2020 2022 2023
Cash $279,277 $252,140 $141,359 $1,086,614 $615,363
Investments $2,908,252 $3,306,243 $2,953,798 $6,318,982 $5,901,881
Receivables $150,723 $99,814 $9,690 $197,999 $23,266
Gross land, buildings, equipment (LBE) $409,512 $461,194 $516,053 $555,817 $787,904
Accumulated depreciation (as a % of LBE) 80.0% 83.7% 76.2% 89.3% 68.5%
Liabilities (as a % of assets) 39.6% 20.9% 22.0% 7.1% 19.9%
Unrestricted net assets $1,978,710 $2,769,042 $2,372,362 $6,342,244 $4,802,248
Temporarily restricted net assets $140,000 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $140,000 $270,000 $270,000 $968,593 $1,061,217
Total net assets $2,118,710 $3,039,042 $2,642,362 $7,310,837 $5,863,465

Key data checks

Key data checks info 2018 2019 2020 2022 2023
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

President & CEO

Courtney Bugler

Courtney is a nonprofit executive with experience leading national health charities to advance program development, organizational infrastructure, fundraising, and advocacy. Courtney has over fifteen years of expertise in cancer, healthy equity, chronic disease management, and public health communications. She is certified and trained in patient navigation, cancer survivor support modules and facilitation, and grant review and evaluation. She has lobbied on Capitol Hill for more than a billion dollars in funding toward the Department of Defense Congressionally Directed Medical Research Program and has served as a consumer advocate research grant reviewer for that same program. As a caregiver to her father, who currently lives with prostate cancer, and a seventeen-year cancer survivor herself, Courtney is honored to be at the forefront of the fight against prostate cancer.

Number of employees

Source: IRS Form 990

ZERO PROSTATE CANCER

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
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Compensation data
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ZERO PROSTATE CANCER

Highest paid employees

SOURCE: IRS Form 990

Compensation
Other
Related
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Compensation data
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ZERO PROSTATE CANCER

Board of directors
as of 02/07/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board co-chair

Thomas Bognanno


Board co-chair

Alicia Morgans

Dana-Farber Cancer Institute

Jonathan Schwartz

Alicia Morgans

Ed Lomasney

Cheryl Nikituk

Tom Bognanno

Kelvin Moses

Brad Lerner

Don Slaght

Alan Goldman

Daniel Perkins

James Schraidt

Jon Poindexter

Karen Jauregui

Marty Chakoian

Sandra Maxey

Teedra Bernard

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 9/6/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

Contractors

Fiscal year ending
There are no fundraisers recorded for this organization.