Our Story - United Spinal Association
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Our Mission

United Spinal Association is a national 501(c) (3) nonprofit membership organization dedicated to empowering and advocating for people living with spinal cord injuries and disorders (SCI/D) and all wheelchair users, to discover greater independence and quality of life.

We are the leading national organization directly serving and advocating for people with SCI/D, all wheelchair users and their loved ones, providing free resources, one-on-one guidance, comprehensive programs and services, quality of life grants, and peer support.

We are united in our belief that people with disabilities have the right to equal opportunities in all facets of society.

Since 1946, United Spinal has worked to overcome the stigma of disability and remove physical barriers to inclusion so that people with SCI/D can pursue their goals.

We support people with SCI/D and all wheelchair users throughout their lifespan by:

  • Advocating for enforcement and enhancement of disability rights, including access to healthcare, mobility equipment, public transportation, rehabilitation, community services and support, and the built environment
  • Empowering our members, their loved ones, care providers and professionals with valuable resources, including information on employment, affordable housing, transportation, health care, home- and community-based independent living, education, peer support, technology, and leisure and recreation
  • Ensuring people with SCI/D and all wheelchair users can maintain the highest levels of independence, health, and personal fulfillment
  • Promoting civic participation and self-advocacy

 

Diversity and Inclusion Statement

United Spinal Association recognizes that we cannot fulfill our mission of enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D) without acknowledging differences in our community. A proactive commitment to diversity and inclusion guides how we compose our workforce and board, develop grassroots leadership, and select our partners in the movement for people with disabilities. We prioritize partnership with corporations and agencies that share this broad commitment to inclusion. Without ensuring that these needs are met, we cannot build a truly representative membership organization.

We strive to represent the interests of all people living with SCI/D, including racial, ethnic and linguistic minorities, women, and LGBTQIA. We tailor our programs, advocacy, publications, and social support work to make the voices of the geographically underrepresented and socioeconomically disadvantaged members of the disability community heard everywhere from Capitol Hill to the marketplace.

The dynamic lives of our members, based across the United States, are the basis of our understanding of how these different identities intersect with the experience of paralysis. We know that we cannot move both our organization and our movement forward without a clearly articulated commitment to diversity.

Rolling Revolution: The History of United Spinal Association

United Spinal Association celebrates over 75 years of service to the disability community. We’re excited to share this video that highlights the rich history of the organization—our roots, leadership and accomplishments. We hope you enjoy it.

Our History

Our Reach

United Spinal has access to over 100,000 wheelchair users, 50+ chapters, 180+ support groups, and 100+ rehabs and hospital partners nationwide––including 10 distinguished Spinal Cord Injury Model System Centers that support innovative projects and research in the field of SCI.

This year, we have touched over 1.8 million lives impacted by disability. Our expansive reach to wheelchair consumers, their families and caregivers, clinicians and disability stakeholders, through our national Spinal Network empowers individuals with disabilities to achieve their highest potential in all facets of life.

Membership in United Spinal is free and open to all individuals with SCI/D.

Our Impact

United Spinal is committed to advocating for greater civil rights and independence for people with disabilities, including expanding education and employment, improving enforcement of the Americans with Disabilities Act (ADA), ensuring adequate access to public transportation and taxi services, and amending Medicare rules that restrict many individuals to their homes and nursing facilities.

opens in a new windowAnnual Reportopens PDF file
opens in a new windowIRS 990opens PDF file

Our Staff

Tom Aiello

Tom Aiello

Chairman of the Board
President of March Marketing, LLC

Illinois

Josh Basile

Joshua Basile

Board Secretary
Trial Attorney at Jack H Olender & Associates

Maryland

Teresa Berner

Theresa Berner

Board Treasurer
Rehabilitation Clinical Manager, OSU Wexner Medical

Ohio

Darren Brehm

Darren Brehm

at large
Senior Director, Direct Materials Procurement, Dairy Farmers of America

Missouri

David Capozzi

David Capozzi

Former Executive Director of the U.S. Access Board

Maryland

Pete Denman

Pete Denman

UX/UI Designer and Research Scientist, Intel Corporation

Oregon

Ronald Drach

Drach Consulting, LLC

Maryland

Brooke Ellison

Brooke Ellison

Associate Professor, Stony Brook University

New York

Kimberly Hill

Kimberly Hill

Chapter Liaison
Executive Director, Louisiana Chapter of United Spinal and the Brain Injury Association of Louisiana

Louisiana

Carmen Jones

Carmen Jones

Board Vice Chair
CEO/President of Solutions Marketing Group

Georgia

Jenny Lieberman

Jenny M. Lieberman

PhD, OTR/L, ATP, Department of Rehabilitation, Mount Sinai Hospital

New York

David Mann

David Mann

Senior Researcher at Mathematica

Pennsylvania

Vincenzo Piscopo

Vincenzo Piscopo

President & CEO

Georgia

Ronnie Raymond

Advocacy for the Disabled-UJA Disability Awareness Task Force, the Jewish Museum, Taxis for All Campaign, Concerts in Motion

New York

Javier Robles

Javier Robles, JD

Director of the Center for Disability Sports, Health and Wellness at Rutgers University

New Jersey

Afsar Shamsi

Afsar Shamsi

Senior Manager, Wellcare

New York

Keaston White

Keaston White

Attorney-Advisor at Office of the Solicitor the United States Department of Interior

Georgia

Monica Wiley

Monica Wiley

Disability Issues Caucus Constituency Organization for the Democratic Party of Virginia; Vice-Chair, United Spinal Chapter of Washington, DC

Virginia

Felecia Woolens

Felecia Woolens

Disability Rights Attorney

Louisiana

Len Zandrow

at large
Partner, Brister & Zandrow

Massachusetts

AJ Assaadi

AJ Assaadi

Vice President, DEI Corporate Partnerships

Virginia

Alex Bennewith

Alexandra Bennewith

Vice President, Government Relations

Virginia

Josie Byzek

Josie Byzek

Digital Experience & Content Director

Pennsylvania

Matt Castelluccio

Matthew Castelluccio

Director, Community Support Programs

New York

Jean Dobbs

Jean Dobbs

Vice President, Publications

North Carolina

Lindsey Elliott

Lindsey Elliott

Director, Member Initiatives

North Carolina

Erin Gildner

Erin Gildner

Director, Chapter Relations

Arkansas

Christine Golden

Christine Golden

Service Director, VetsFirst

Pennsylvania

Kleo King

Kleo King

Senior Director, Accessibility Operations; Counsel, Accessibility Consulting Services

New York

Steve Lieberman

Steve Lieberman

Director, Advocacy & Policy

Maryland

Dominic Marinelli

Dominic Marinelli

Vice President, Accessibility Consulting Services

New York

Brook McCall

Brook McCall

Senior Director, Tech Access Initiative

Oregon

Abby Ross

Abby Ross

Chief Operating Officer

New York

Tom Scott

Tom Scott

Chief Marketing Officer

New York

Lesly St. Louis

Lesly St. Louis

Director, Employment and DEI Programs

New York

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