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Spina Bifida Association - Research, Advocacy, Education, and Support

COLLECTED BY

Organization: Archive Team

Formed in 2009, the Archive Team (not to be confused with the archive.org Archive-It Team) is a rogue archivist collective dedicated to saving copies of rapidly dying or deleted websites for the sake of history and digital heritage. The group is 100% composed of volunteers and interested parties, and has expanded into a large amount of related projects for saving online and digital history.

History is littered with hundreds of conflicts over the future of a community, group, location or business that were "resolved" when one of the parties stepped ahead and destroyed what was there. With the original point of contention destroyed, the debates would fall to the wayside. Archive Team believes that by duplicated condemned data, the conversation and debate can continue, as well as the richness and insight gained by keeping the materials. Our projects have ranged in size from a single volunteer downloading the data to a small-but-critical site, to over 100 volunteers stepping forward to acquire terabytes of user-created data to save for future generations.

The main site for Archive Team is at archiveteam.org and contains up to the date information on various projects, manifestos, plans and walkthroughs.

This collection contains the output of many Archive Team projects, both ongoing and completed. Thanks to the generous providing of disk space by the Internet Archive, multi-terabyte datasets can be made available, as well as in use by the Wayback Machine, providing a path back to lost websites and work.

Our collection has grown to the point of having sub-collections for the type of data we acquire. If you are seeking to browse the contents of these collections, the Wayback Machine is the best first stop. Otherwise, you are free to dig into the stacks to see what you may find.

The Archive Team Panic Downloads are full pulldowns of currently extant websites, meant to serve as emergency backups for needed sites that are in danger of closing, or which will be missed dearly if suddenly lost due to hard drive crashes or server failures.

Collection: Archive Team: .ua

TIMESTAMPS

The Wayback Machine - https://web.archive.org/web/20220531194022/https://www.spinabifidaassociation.org/

Register for the Spina Bifida Clinical Care Meeting

Advanced registration closes May 27th

Our Priorities

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.

What We Do

Education

We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida.

Advocacy

We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care.

Research

Guidelines for the Care of People with Spina Bifida provide evidence-based guidance on caring for Spina Bifida.

Support

Our National Resource Center provides referrals and resources, responding to inquires in Spanish and English.

What's New

blog

Spina Bifida and the Covid-19 Vaccine: Results from Spina Bifida Association Survey

Resources for Everyone

We are dedicated to serving and supporting every person impacted by Spina Bifida

We can Help

Have a question? Need support? We're here for you. Contact our National Resource Center.

Spina Bifida Association