Clinics

Spina Bifida Clinics

This listing represents the most up-to-date information we have gathered about clinics in the United States that serve people with Spina Bifida.

As you search for a clinic, please keep in mind that:

  1. This information is subject to change while we continue to update the list. Do you know a clinic or individual provider that should be featured here? Let us know! Please send a message to Judy Thibadeau, Director of Research and Services, at jthibadeau@sbaa.org.
  2. Some services for adults are housed within children’s clinics. Please call the numbers we’ve provided and request their staff to point you in the right direction.
  3. Each clinic has its own unique structure and process of providing care. Please call the numbers shown and tell their staff what you need. They will direct you to the appropriate department or contact.
  4. The clinics are listed alphabetically by city.

*Clinics with an asterisk are Clinic Care Partners.

States A-F

ALABAMA

Children’s of Alabama Spina Bifida Program

1600 7th Avenue South

Birmingham, AL  35233

205-638-5281

Ages served: 0-18

*UAB Department of Physical Medicine and Rehabilitation – Spain Rehabilitation Center

1717 6th Avenue S.

Birmingham, AL  35233

205-934-4131

Ages served: Adults

ALASKA

PROVIDENCE MEDICAL GROUP – PEDIATRIC SUBSPECIALTIES CLINIC

3340 Providence Drive, Suite A-351

Anchorage, AK  99508

907-212-4824

Ages served: 0-18

ARIZONA

*DISTRICT MEDICAL GROUP CHILDREN’S REHABILITATIVE SERVICES

3141 N. 3rd Avenue

Phoenix, AZ  85013

602-914-1520

Ages served: 0-21

*Phoenix Children’s 

1919 E. Thomas

Phoenix, AZ  85016

602-933-KIDS (5437)

Ages served: 0-25

Children’s Clinic Rehabilitation Services (CCRS)

2600 N Wyatt Drive

Tucson, AZ  85712

520-324-5437

Ages served: 0-21

ARKANSAS

* ARKANSAS CHILDREN’S HOSPITAL 

Spinal Cord Disorders Clinic

1 Children’s Way

Little Rock, AR 72202

If mailing, please add: MS-650

501-364-1806

Ages served: 0-18

CALIFORNIA

LOMA LINDA OUTPATIENT REHABILITATION CENTER

11406 Loma Linda Dr. #300

Loma Linda, CA  92354

909-558-6277

Ages served: Adults

MILLER CHILDREN’S AND WOMEN’S HOSPITAL SPINA BIFIDA CCS CENTER

2801 Atlantic Avenue

Long Beach, CA  90806

562-933-8832

Ages served: 0-21

 ORTHOPEDIC INSTITUTE FOR CHILDREN

403 West Adams Boulevard

Los Angeles, CA  90007

213-741-8352

Ages served: 0-18

Valley Children’s Healthcare

9300 Valley Children’s Place

Madera, CA  93636

559-353-6215

Ages served: 0-21

Search “Spina Bifida” and select the desired specialty

*Regional Spina Bifida Program, Kaiser Oakland Medical Center

280 W. MacArthur Boulevard

Oakland, CA  94611

510-752-6920

Ages served: All ages

*UCSF Benioff Children’s Hospital

1825 Fourth Street
Fifth Floor
San Francisco, CA 94158

(415) 476-3899

Ages served: 0-18

Children’s Hospital of Orange County Spina Bifida Clinic

1201 West LaVeta Avenue

Orange, CA  92868

714-509-8514

Ages served: Information not available at this time

SHRINERS FOR CHILDREN MEDICAL CENTER – PASADENA

909 South Fair Oaks Avenue

Pasadena, CA  91105

626-389-9300

Ages served: 0-18

*CHILDREN’S HOSPITAL OF LOS ANGELES

4650 Sunset Boulevard

Los Angeles, CA  90027

323-361-2384

Ages served:  0-21

*SHRINERS HOSPITAL FOR CHILDREN – SACRAMENTO

2425 Stockton Boulevard

Sacramento, CA  95817

916-453-2000

Ages served: 0-18

*LOMA LINDA UNIVERSITY CHILDREN’S HOSPITAL PEDIATRIC SPECIALTY CLINICS

2195 Club Center Drive #G

San Bernardino, CA  92408

909-835-1816

Ages served: 0-21

Rady Children’s Hospital Spinal Defects Clinic

3020 Children’s Way

San Diego, CA  92123

858-966-8896

Ages served: 0-21, 0-Transition

Sharp Allison deRose Rehabilitation Center

2999 Health Center Drive

San Diego, CA  92123

858-939-3097

Ages served: Information not available at this time

*Stanford Children’s Health Specialty Services

725 Welch Rd

Palo Alto, CA 94304

408-426-5625

Ages served: 0-18

COLORADO

*Children’s Hospital Colorado, Pediatric Rehabilitation Department

13123 E 16th Avenue

Aurora, CO  80230

720-777-2806

Ages served: Information not available at this time

University of Colorado-Memorial Hospital Central

1400 E Boulder Street

Colorado Springs, CO  80909

719-365-5000

CONNECTICUT

*Connecticut Children’s Hospital

282 Washington Street

Hartford, CT  06106

860-545-9000

Ages served: 0-18

Yale New Haven Health, Pediatric Specialty Clinic

1Long Wharf Drive

New Haven, CT  06511

203-785-4081

Ages served: Information not available at this time

DELAWARE

Nemours/Alfred I. duPont Hospital for Children

1600 Rockland Rd.

Wilmington, DE  19803

302-651-4200

Ages served: 0-18

DISTRICT OF COLUMBIA

Children’s National Health System, Spina Bifida Program

111 Michigan Avenue, NW

Washington, DC  20010

202-476-3094

Ages served: 0-18

FLORIDA

UF Health Pediatric Neurosurgery

836 Prudential Drive, Suite 1205

Jacksonville, FL  32207

904-633-0780

Ages served: 0-Transition, Adults

Holtz Children’s Hospital UM / Jackson Memorial Medical Center 

1611 NW 12th Avenue, East Tower

Miami, FL  32827

407-650-7715

Ages served: 0-18

Nemours Children’s Health System

13535 Nemours Parkway

Orlando, FL  32827

407-650-7715

Ages served: Information not available at this time

*Orlando Health / Arnold Palmer Pediatric Specialty Practice

1725 Cook Avenue

Orlando, FL  32806

321-841-5683

Ages served: 0-18, will refer adults

States G-K

GEORGIA

CHILDREN’S HEALTHCARE OF ATLANTA – MULTISPECIALTY CLINICS

1400 Tullie Road NE

Atlanta, GA 30329

404-785-KIDS (5437)

Ages served: 0-18, 0-Transition

 

IDAHO

St. Luke’s Children’s Spina Bifida Clinic

100 East Idaho Street, Suite 200

Boise, ID  83712

208-381-7122

Ages served: 0-21

ILLINOIS

*Ann & Robert H. Lurie Children’s Hospital of Chicago

225 E Chicago Avenue

Chicago, IL  60611

1-800-543-7362 

Ages served: 0-Transition

Northwestern Medicine

Transitional Adult Congenital Genitourinary (TRAC) Clinic

251 E Huron St.

Chicago, IL 60611

312-926-2000

Ages served: Adults

Shirley Ryan Ability Lab – Physical Medicine and Rehabilitation

355 East Erie

Chicago, IL  60611

312-238-1000

Ages served: Adults, PM&R only

Shriners Hospital for Children – Chicago

2211 North Oak Park Avenue

Oak Park, IL  60707

773-622-5400

Ages served: 0-18

Advocate Lutheran General Hospital / Advocate Children’s Hospital

1775 Dempster Street

Park Ridge, IL  60068

847-723-2210

Ages served: 0-Transition

OSF Healthcare / Children’s Hospital of Illinois Spina Bifida Clinic

530 NE Glen Oak Lane

Peoria, IL  61603

309-624-4064

Ages served: 0-18

INDIANA

*Riley Hospital for Children at Indiana University Health

705 Riley Hospital Drive

Indianapolis, IN  46202

317-944-4846

Ages served: 0-18

Riley Hospital Adult Spina Bifida Clinic

705 Riley Hospital Drive

Indianapolis, IN  46202

317-944-7458

Ages served: Adults

KANSAS

Cerebral Palsy/Medically Complex Clinic KU Wichita Pediatrics

620 North Carriage Parkway

Wichita, KS  67208

316-962-1824

Ages served: Information not available at this time

KENTUCKY

Frazier Rehab Institute

220 Abraham Flexner Way

Louisville, KY  40202

502-587-4011

Ages served: Information not available at this time

Norton Children’s Hospital

231 E. Chestnut Street

Louisville, KY  40202

502-637-7363*

*SBA of Kentucky will direct you to the appropriate contact.

Ages served: 0-18

States L-P

LOUISIANA

Ochsner Health System Primary Care Pediatrics

1514 Jefferson Highway

Jefferson, LA  70121

504-842-7538

Ages served: 0-Transition

*Children’s Hospital New Orleans

Monthly Spina Bifida Clinic (Physical Medicine, Orthopedics, Neurosurgery, Urology, Neuropsychology)

200 Henry Clay Avenue

New Orleans, LA 70118

504-896-2888

MAINE

Maine Medical Partners Pediatric Neurology

49 Spring Street #2

Scarborough, ME  04074

207-396-7337

Ages served: 0-18

MARYLAND

*Kennedy Krieger Institute

Philip A. Keelty Center for Spina Bifida and Related Conditions

801 North Broadway

Baltimore, MD  21205

443-923-9130

Ages served: All

MASSACHUSETTS

MASSGENERAL FOR CHILDREN

55 Fruit Street, 11th Floor
Boston, MA  02114

617-726-7552

Ages served: All

* Boston Children’s Hospital

300 Longwood Avenue

Boston, MA  02115

617-355-8532

Ages served: 0-Transition

Shriners Hospital for Children – Springfield

516 Carew Street

Springfield, MA  01104

413-787-2065

Ages served: 0-Transition

MICHIGAN

Michigan Medicine Physical Medicine & Rehabilitation

1500 E Medical Center Drive

Ann Arbor, MI  48109

734-936-7175

Ages served: Adults

Children’s Hospital of Michigan Specialty Center

3901 Beaubien Boulevard

Detroit, MI  48201

313-745-5437

Ages served: 0-Transition

Sparrow Hospital – Sparrow Professional Building

1200 E. Michigan Avenue, Suite 460

Lansing, MI  48912

517-364-1000

Ages served: 0-21, 0-Transition

MINNESOTA

Shriners Children’s – Twin Cities

215 Radio Drive Suite 100

Woodbury, MN 55125

612-596-6100

Ages served: 0-18

Mayo Clinic

200 First Street, SW

Mayo Building, 16th Floor

Rochester, MN  55905

855-629-6543 (MAYOKID)

Ages served: 0-21, 0-Transition

*Gillette Lifetime Specialty Healthcare

435 Phalen Boulevard

St Paul, MN  55130

651-290-8707

Adult scheduling: 800-634-1417

Ages served: All

MISSOURI

*Children’s Mercy Hospital & Clinics, Spinal Differences Clinic

2401 Gillham Road

Kansas City, MO  64108

816-234-3970

Ages served: 0-21

SSM Health Cardinal Glennon Children’s Hospital

1465 S. Grand Boulevard

St. Louis, MO  63104

314-577-5600

Ages served: 0-18

St. Louis Children’s Hospital

1 Children’s Place

St. Louis, MO  63110

800-678-5437

Ages served: 0-Transition

MONTANA

Montana Children’s

310 Sunnyview Lane

Kalispell, MT 59901

(406) 890-7500

Ages served: 0-21

NEBRASKA

Children’s Hospital & Medical Center’s Children’s Developmental Clinic (CDC)

8200 Dodge Street

Omaha, NE  68114-4113

402-955-4160

Ages served: Information not available at this time

NEW HAMPSHIRE

Children’s Hospital at Dartmouth-Hitchcock

1 Medical Center Drive

Lebanon, NH  03756

603-653-9883

Ages served: 0-Transition

NEW JERSEY

Kessler Institute for Rehabilitation

1199 Pleasant Valley Way

West Orange, NJ  07052

973-731-3600 ext. 2258 OR 973-731-3600 ext. 6999

Ages served: Adults

NEW MEXICO

Carrie Tingley Hospital

Pediatric Orthopedics

127 University Boulevard NE

Albuquerque, NM  87102

505-272-5286

Ages served: 0-21, 0-Transition

NEW YORK

Montefiore Department of Physical Medicine and Rehabilitation

111 E 210th Street

Bronx, NY  10467

844-438-3862

Ages served: All

NYU Langone Initiative for Women with Disabilities

530 First Avenue, 12th Floor

New York, NY  10016

212-598-6429

Ages served: Adults

University of Rochester Medical Center / Golisano Children’s Hospital

150 Crittenden Blvd.

Rochester, NY  14642

585-275-2986

Ages served: 0-18

Upstate Golisano Children’s Hospital

One Children’s Circle

Syracuse, NY  13210

315-464-6395

Ages served: 0-Transition

ALBANY MEDICAL CENTER – PEDIATRIC SPINA BIFIDA CLINIC

391 Myrtle Ave., Suite 3B

Albany, NY 12208

518-262-5401

Ages served: 0-Transition

ALBANY MEDICAL CENTER – ADULT SPINA BIFIDA CLINIC

47 New Scotland Avenue

Albany, NY 12208

518-262-5088

Ages served: Adults

NORTH CAROLINA

UNC Department of Physical Medicine and Rehabilitation

1807 N. Fordham Boulevard

Chapel Hill, NC  27514

984-974-9747

Ages served: 0-21

Levine Children’s Specialty Center

Medical Center Plaza

1001 Blythe Boulevard, Suite 200

Charlotte, NC  28203

704-381-8840

Ages served: 0-Transition

*Duke University Hospital/Lenox Baker Children’s Hospital

3000 Erwin Road

Durham, NC  27705

919-681-5456

Ages served: All

NORTH DAKOTA

Sanford Health Care

237 Broadway N

Fargo, ND  58102

701-234-6600

Ages served: 0-18

OHIO

* Cincinnati Children’s Hospital Medical Center

3430 Burnet Ave.

Cincinnati, OH 45229

513-636-8059

Ages served: 0-Transition

Cleveland Clinic Pediatrics

9500 Euclid Avenue

Cleveland, OH  44195

216-444-4899

Ages served: 0-18

Cleveland Clinic Adult Spina Bifida Clinic

9500 Euclid Avenue, Q10

Cleveland, OH  44195

216-444-2146

Ages served: Adults

UH Rainbow Babies & Children’s Hospital

11100 Euclid Avenue RBC 2311

Cleveland, OH  44024

216-844-8438

Ages served: Information not available at this time

*Nationwide Children’s Hospital

700 Children’s Drive

Columbus, OH  43205

614-722-5725

Ages served: 0-21, 0-Transition

Dayton Children’s Hospital Myelomeningocele Clinic

3333 West Tech Boulevard

Miamisburg, OH  45342

937-641-5487

Ages served: 0-18

Mercy St. Vincent Medical Center Pediatric Specialty Clinic

2213 Cherry Street

Toledo, OH  43608

419-251-3232

Ages served: Information not available at this time

OKLAHOMA

*OKLAHOMA UNIVERSITY CHILDREN’S – PEDIATRIC UROLOGY

1200 N. Children’s Ave., Suite 7D

Oklahoma City, OK 73104

(405) 271-3800

Ages served: 0-18

 

OREGON

OHSU Child Development & Rehabilitation Center

University of Oregon Campus

Clinical Services Building

901 E.18th Avenue

Eugene, OR  97403

541-346-3575

Ages served: Information not available at this time

*Doernbecher Children’s Hospital at Oregon Health and Science University

700 S.W. Campus Drive

Portland, OR  97239

503-346-0640

Ages served: 0-18

Legacy Health Randall Children’s Neurosurgery

Legacy Emanuel Medical Center

Medical Office Building 2, Suite 330B

501 N. Graham Street

Portland, OR  97227

503-413-3690

Ages served: Information not available at this time

SHRINERS HOSPITAL FOR CHILDREN – PORTLAND

3101 SW Sam Jackson Park Road

Portland, OR  97239

503-241-5090

Ages served: 0-18

PENNSYLVANIA

MOSSREHAB EASTERN REGIONAL CENTER FOR ADULTS WITH SPINA BIFIDA

60 Township Line Road

Elkins Park, PA  19027

215-663-6677

Ages served: Adults

Shriners Hospital for Children – Erie

1645 West 8th Street

Erie, PA  16505

814-875-8700

Ages served: 0-Transition

*PENN STATE HEALTH SPINA BIFIDA PROGRAM

Penn State Children’s Hospital

Spina Bifida Clinic – Pediatrics and Transitional Care

30 Hope Drive, Suite 2200 (Second floor)

Hershey, PA  17033

717-531-7311

Ages served: 0-18

*Children’s Hospital of Philadelphia (CHOP)

Buerger Center for Advanced Pediatric Care

3500 Civic Center Boulevard

Philadelphia, PA  19104

215-590-1760

Ages served: 0-18

*University of Pittsburgh Medical Center / Adult Spina Bifida Clinic

Physical Medicine and Rehabilitation Office

1400 Locust Street, Building D, Ste. G103

Pittsburgh, PA  15219

1-800-533-UPMC (533-8762)

Ages served: Adults

*UPMC Children’s Hospital of Pittsburgh / Spina Bifida Program

4401 Penn Avenue, Floor 2

Pittsburgh, PA  15224

412-692-5096

Ages served: 0-22

States M-Z

NEW YORK

Upstate University Hospital / Adult Spina Bifida Clinic

750 E Adams Street

Syracuse, NY  13210

315 464-4014

Ages served: Adults

States R-U

RHODE ISLAND

Hasbro Children’s Hospital at Rhode Island Hospital

Children’s Neurodevelopment Center

335R Prairie Avenue, Suite 1A

Providence, RI  02905

401-444-5685

Ages served: 0-21, 0-Transition

SOUTH CAROLINA

Medical University of South Carolina Pediatric Spina Bifida Team

Rutledge Tower

135 Rutledge Avenue

Charleston, SC  29425

843-876-0444

Ages served: 0-18

Shriners Hospital for Children – Greenville

950 West Faris Road

Greenville, SC  29605

864-271-3444

Ages served: 0-18

TENNESSEE

T.C. Thompson Children’s Hospital

Walter E. Boehm Birth Defects Center

975 E. 3rd Street

Chattanooga, TN  37403

423-778-2222

Ages served: All

Le Bonheur Children’s Medical Center

848 Adams Avenue

Memphis, TN  38103

901-287-PEDS

1-866-870-5570

Ages served: 0-21

Vanderbilt Children’s Hospital Spina Bifida Program

Doctor’s Office Tower, 6th Floor

2200 Children’s Way

Nashville, TN  37212

615-936-2457

Ages served: 0-18

TEXAS

Dell Children’s Medical Center, Marnie Paul Specialty Center

4900 Mueller Boulevard, 2nd Floor

Austin, TX  78723

512-324-0137

Ages served: 0-Transition, Adults

Moody Clinic

1901 East 22nd Street

Brownsville, TX  78521

956-542-8504

Ages served: 0-18

UT Southwestern Medical Center, Internal Medicine Subspecialty Center

5323 Harry Hines Boulevard

Dallas, TX  75390

Appointments: 214-645-2300

Urology: 214-645-8765

Neurology: 214-645-8800

Ages served: Information not available at this time

*Cook Children’s Medical Center

STRONG Clinic

750 8th Ave

Fort Worth, TX 76104

(682) 303 -0376

Ages Served: 0 – 18

Shriners Hospital for Children – Houston

6977 Main Street

Houston, TX  77030

713-797-1616

Ages served: 0-18

*Texas Children’s Hospital Spina Bifida Clinic

Texas Medical Center

6701 Fannin Street

Wallace Tower, Floor 16, Suite 1610.01

Houston, TX  77030

832-822-4308

Ages served: 0-18, 0-Transition

Methodist Children’s Hospital Pediatric Specialty Clinics

Methodist Plaza

4499 Medical Drive, Sublevel One

San Antonio, TX  78229

800-297-1021

210-575-7371

Ages served: 0-18

*UNIVERSITY OF TEXAS SPINA BIFIDA CLINIC

6410 Fannin Street
Suite 950
Houston, TX 77030
(832) 325-7234
Ages served: 0-18

BAYLOR COLLEGE OF MEDICINE MEDICAL CENTER

McNair Campus

7200 Cambridge St.

8th Floor, Suite 8A

Houston, TX  77030

Ages served: Adults

UTAH

*Primary Children’s Medical Center / Spina Bifida Clinic

81 N. Mario Capecchi Drive

Salt Lake City, UT  84113

801-662-1675

Ages served: 0-18

States V-Z

VERMONT

University of Vermont Children’s Hospital / Spina Bifida Collaborative Care Program

111 Colchester Avenue

Main Campus, East Pavilion, Level 4

Burlington, VT  05401

802-847-8840

Ages served: 0-Transition

VIRGINIA

University of Virginia Health System

Child Development and Rehabilitation Center

1204 W. Main Street, Fourth Floor

Charlottesville, VA  22903

434-924-8184

Ages served: Information not available at this time

Children’s Hospital of the King’s Daughters Spina Bifida Clinic

601 Children’s Lane

Norfolk, VA  23507

757-668-9021

Ages served: 0-21, 0-Transition

Children’s Hospital of Richmond at VCU Children’s Pavilion / Spina Bifida Clinic

1000 East Broad Street

Richmond, VA  23219

1-800-762-6161

804-828-CHOR (2467)

Ages served: 0-18

VCU Health Geriatric and Continuum Services

Ambulatory Care Center

417 N 11th Street

Richmond, VA  23298

1-800-762-6161

Ages served: Adults

WASHINGTON

Seattle Children’s Hospital and Regional Medical Center / Neurodevelopmental Clinic

4800 Sand Point Way NE

Seattle, WA  98105

206-987-2210

Ages served: 0-21, 0-Transition

WEST VIRGINIA

WVU Medicine Pediatric Neurosurgery

1 Medical Center Drive, Floor 2

Morgantown, WV  26506

304-293-5041

Ages served: Information not available at this time

WISCONSIN

Gundersen Health System

1900 South Avenue

LaCrosse, WI  54601

608-775-2276

Ages served: 0-Transition

*University of Wisconsin/American Family Children’s Hospital Pediatric Spina Bifida Clinic

1675 Highland Avenue

Madison, WI  53792

608-263-6420

Ages served: 0-21, 0-Transition

Marshfield Medical Health System

1000 N Oak Avenue

Marshfield, WI  54449

715-387-5350

1-866-520-2510

Ages served: 0-18

*Children’s Hospital of Wisconsin Spina Bifida Program

8915 W. Connell Court

Milwaukee, WI  53226

414-266-4840

414-266-2690

Ages served: 0-18