See Guidelines for the Care of People with Spina Bifida

Click here to see the Guidelines

Our Priorities

The mission of the Spina Bifida Association is to promote the prevention of Spina Bifida and enhance the lives of all affected through research, advocacy, education, and support.

What We Do

Education

We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida.

Advocacy

We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care.

Research

Guidelines for the Care of People with Spina Bifida provide evidence-based guidance on caring for Spina Bifida.

Support

Our National Resource Center provides referrals and resources, responding to inquires in Spanish and English.

The Latest

story

Erica Comparin: Harper’s Determination

Three days before Mother’s Day in 2016 our baby girl was diagnosed with Spina Bifida?

- Erica Comparin, Mother to Harper

  • news

    House Appropriations Committee Approves $2 Million Funding Increase for the National Spina Bifida Program

  • blog

    Teal on The Hill Scholarship Recipient: Diane Glass – In Her Own Words

  • blog

    Spina Bifida Advocates Turn the Hill Teal

We offer resources and services for everyone in the Spina Bifida community.

Find support in your community

We have Chapters across the country ready to provide education, networking, social events, and more.

Find a Chapter 
Home page photo credit: Tylynn B Photography