{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,7,31]],"date-time":"2024-07-31T17:52:43Z","timestamp":1722448363652},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"value":"9781643682822","type":"print"},{"value":"9781643682839","type":"electronic"}],"license":[{"start":{"date-parts":[[2022,5,16]],"date-time":"2022-05-16T00:00:00Z","timestamp":1652659200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022,5,16]]},"abstract":"Compared to the general population, childhood cancer survivors represent a vulnerable population as they are at increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. The Survivorship Passport aims to capture key health data about the survivors and their treatment, as well as personalized recommendations and a care plan with the aim to support long-term survivorship care. The PanCareSurPass (PCSP) project building on the experience gained in an earlier implementation in Giannina Gaslini Institute, Italy, will implement and rigorously assess an integrated, HL7 FHIR based, implementation of the Survivorship Passport. The six implementation countries, namely Austria, Belgium, Germany, Italy, Lithuania, and Spain, are supported by different national or regional digital health infrastructures and Electronic Medical Record (EMR) systems. Semi structured interviews were carried out to explore potential factors affecting implementation, identify use cases, and coded data that can be semi-automatically transferred from the EMR to SurPass. This paper reflects on findings of these interviews and confirms the need for a multidisciplinary and multi-professional approach towards a sustainable and integrated large-scale implementation of the Survivorship Passport across Europe.<\/jats:p>","DOI":"10.3233\/shti220363","type":"book-chapter","created":{"date-parts":[[2022,5,20]],"date-time":"2022-05-20T07:27:20Z","timestamp":1653031640000},"source":"Crossref","is-referenced-by-count":4,"title":["Factors Influencing Implementation of the Survivorship Passport: The IT Perspective"],"prefix":"10.3233","author":[{"given":"Catherine","family":"Chronaki","sequence":"first","affiliation":[{"name":"HL7 Europe, Brussels, Belgium"}]},{"given":"Eliana","family":"Charalambous","sequence":"additional","affiliation":[{"name":"HL7 Europe, Brussels, Belgium"},{"name":"Venizeleio General Hospital of Heraklion, Heraklion, Greece"}]},{"given":"Giorgio","family":"Cangioli","sequence":"additional","affiliation":[{"name":"HL7 Europe, Brussels, Belgium"}]},{"given":"G\u00fcnter","family":"Schreier","sequence":"additional","affiliation":[{"name":"AIT Austrian Institute of Technology, Graz, Austria"}]},{"given":"Selina","family":"van den Oever","sequence":"additional","affiliation":[{"name":"Princess Maxima Center for Paediatric Oncology, Utrecht, The Netherland"}]},{"given":"Helena","family":"van der Pal","sequence":"additional","affiliation":[{"name":"Princess Maxima Center for Paediatric Oncology, Utrecht, The Netherland"}]},{"given":"Leontien","family":"Kremer","sequence":"additional","affiliation":[{"name":"Princess Maxima Center for Paediatric Oncology, Utrecht, The Netherland"}]},{"given":"Anne","family":"Uyttebroeck","sequence":"additional","affiliation":[{"name":"University Hospitals Leuven, Leuven, Belgium"}]},{"given":"Bart","family":"Van den Bosch","sequence":"additional","affiliation":[{"name":"University Hospitals Leuven, Leuven, Belgium"}]},{"given":"Justas","family":"Trinkunas","sequence":"additional","affiliation":[{"name":"Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania"}]},{"given":"Jelena","family":"Rascon","sequence":"additional","affiliation":[{"name":"Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania"}]},{"given":"Ruth","family":"Ladenstein","sequence":"additional","affiliation":[{"name":"Children\u2019s Cancer Research Institute, Vienna, Austria"},{"name":"St. Anna Children\u2019s Hospital, Vienna, Austria"}]},{"given":"Vanessa","family":"D\u00fcster","sequence":"additional","affiliation":[{"name":"Children\u2019s Cancer Research Institute, Vienna, Austria"}]},{"given":"Edit","family":"Bardi","sequence":"additional","affiliation":[{"name":"St. Anna Children\u2019s Hospital, Vienna, Austria"},{"name":"Department of Paediatrics and Adolescent Medicine, Johannes Kepler University Linz, Kepler University Hospital, Linz, Austria"}]},{"given":"Diana","family":"Walz","sequence":"additional","affiliation":[{"name":"Division Medical Documentation, IMBEI, University Medical Center Mainz, Mainz, Germany"}]},{"given":"Anna-Liesa","family":"Filbert","sequence":"additional","affiliation":[{"name":"German Childhood Cancer Registry, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}]},{"given":"Desiree","family":"Grabow","sequence":"additional","affiliation":[{"name":"German Childhood Cancer Registry, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}]},{"given":"Thorsten","family":"Langer","sequence":"additional","affiliation":[{"name":"University of L\u00fcbeck, L\u00fcbeck, Germany"}]},{"given":"Adela","family":"Ca\u00f1ete Nieto","sequence":"additional","affiliation":[{"name":"Fundacion para la Investigacion del Hospital Universitario La Fe De La Comunidad Valenciana, Valencia, Spain"}]},{"given":"Antonio J.","family":"Ordu\u00f1a Gal\u00e1n","sequence":"additional","affiliation":[{"name":"Fundacion para la Investigacion del Hospital Universitario La Fe De La Comunidad Valenciana, Valencia, Spain"}]},{"given":"Marisa","family":"Correcher Palau","sequence":"additional","affiliation":[{"name":"Fundacion para la Investigacion del Hospital Universitario La Fe De La Comunidad Valenciana, Valencia, Spain"}]},{"given":"Giacomo","family":"Cavalca","sequence":"additional","affiliation":[{"name":"IRCCS, Istituto Giannina Gaslini, Genova, Italy"}]},{"given":"Riccardo","family":"Haupt","sequence":"additional","affiliation":[{"name":"IRCCS, Istituto Giannina Gaslini, Genova, Italy"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","dHealth 2022"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI220363","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,1,23]],"date-time":"2023-01-23T09:34:53Z","timestamp":1674466493000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI220363"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,5,16]]},"ISBN":["9781643682822","9781643682839"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti220363","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"value":"0926-9630","type":"print"},{"value":"1879-8365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,5,16]]}}}