{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,9,16]],"date-time":"2024-09-16T02:10:21Z","timestamp":1726452621262},"reference-count":44,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2013,8,30]],"date-time":"2013-08-30T00:00:00Z","timestamp":1377820800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Health Informatics J"],"published-print":{"date-parts":[[2013,12]]},"abstract":" The five parts of the ISO EN 13606 standard define a means by which health-care records can be exchanged between computer systems. Starting within the European standardisation process, it has now become internationally ratified in ISO. However, ISO standards do not require that a reference implementation be provided, and in order for ISO EN 13606 to deliver the expected benefits, it must be provided not as a document, but as an operational system that is not vendor specific. This article describes the evolution of an Extensible Markup Language (XML) Schema through three iterations, each of which emphasised one particular approach to delivering an executable equivalent to the printed standard. Developing these operational versions and incorporating feedback from users of these demonstrated where implementation compromises were needed and exposed defects in the standard. These are discussed herein. They may require a future technical revision to ISO EN 13606 to resolve the issues identified. <\/jats:p>","DOI":"10.1177\/1460458212473993","type":"journal-article","created":{"date-parts":[[2013,8,31]],"date-time":"2013-08-31T02:07:07Z","timestamp":1377914827000},"page":"264-280","update-policy":"http:\/\/dx.doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":4,"title":["Evaluation of ISO EN 13606 as a result of its implementation in XML"],"prefix":"10.1177","volume":"19","author":[{"given":"Tony","family":"Austin","sequence":"first","affiliation":[{"name":"University College London, UK"}]},{"given":"Shanghua","family":"Sun","sequence":"additional","affiliation":[{"name":"St. George\u2019s, University of London, UK"}]},{"given":"Taher","family":"Hassan","sequence":"additional","affiliation":[{"name":"University College London, UK"}]},{"given":"Dipak","family":"Kalra","sequence":"additional","affiliation":[{"name":"University College London, UK"}]}],"member":"179","published-online":{"date-parts":[[2013,8,30]]},"reference":[{"issue":"4","key":"bibr1-1460458212473993","first-page":"289","volume":"38","author":"Tange HJ","year":"1999","journal-title":"Methods Inf Med"},{"key":"bibr2-1460458212473993","unstructured":"Kalra D. Clinical foundations and information architecture for the implementation of a federated health record service. PhD Thesis, University of London, UK, 2002, http:\/\/eprints.ucl.ac.uk\/1584\/ (accessed March 2012)."},{"key":"bibr3-1460458212473993","unstructured":"TheBigOptOut.org. About the campaign, http:\/\/www.nhsconfidentiality.org\/?pageid=3 (accessed January 2012)."},{"key":"bibr4-1460458212473993","unstructured":"Lloyd D, Kalra D, Beale T, (eds). The GEHR final architecture description. The Good European Health Record Project: Deliverable 19, 1995. Brussels: European Commission, 250 pp. https:\/\/www.ucl.ac.uk\/chime\/research\/gehr\/deliverable-19.pdf (accessed July 2010)."},{"key":"bibr5-1460458212473993","doi-asserted-by":"publisher","DOI":"10.1109\/4233.735777"},{"first-page":"259","volume-title":"Toward an electronic health record Europe \u201999","author":"Sottile PA","key":"bibr6-1460458212473993"},{"key":"bibr7-1460458212473993","unstructured":"Dixon R, Grubb PA, Lloyd D, Consolidated list of requirements. EHCR Support Action Deliverable 1.4, 2001. Brussels: European Commission DGXIII, 59 pp. http:\/\/www.chime.ucl.ac.uk\/HealthI\/EHCR-SupA\/del1-4v13.PDF (accessed July 2010)."},{"key":"bibr8-1460458212473993","unstructured":"CEN Technical Committee 251. http:\/\/www.cen.eu\/CEN\/Sectors\/TechnicalCommitteesWorkshops\/CENTechnicalCommittees\/Pages\/Standards.aspx?param=6232&title=CEN%2FTC+251 (accessed March 2012)."},{"key":"bibr9-1460458212473993","unstructured":"Hurlen P (ed.). ENV 12265:1995. Electronic Healthcare Record Architecture, 1995. Brussels CEN Technical Committee\/251."},{"key":"bibr10-1460458212473993","unstructured":"Kay S, Marley T (eds). ENV 13606:1999. EHCR Communications: Part 1 Electronic Healthcare Record Architecture, 1999. Brussels CEN Technical Committee\/251."},{"volume-title":"Project team 1-027. ENV 13606: 1999 EHCR communications: part 2 domain termlist","year":"1999","author":"Rossi Mori A","key":"bibr11-1460458212473993"},{"volume-title":"ENV 13606:1999. EHCR communications: part 3 distribution rules","year":"1999","author":"Hopkins R","key":"bibr12-1460458212473993"},{"volume-title":"ENV 13606: EHCR communications: part 4 messages for exchange of information","year":"1999","author":"Markwell D","key":"bibr13-1460458212473993"},{"key":"bibr14-1460458212473993","unstructured":"Turner L. A brief history of the development of SGML. SGML User\u2019s Group, http:\/\/xml.coverpages.org\/sgmlhist0.html (1990, accessed March 2012)."},{"key":"bibr15-1460458212473993","unstructured":"ISO 8879:1986. Information processing \u2013 text and office systems \u2013 Standard Generalized Markup Language (SGML)."},{"first-page":"329","volume-title":"Medical informatics Europe \u2019 97","author":"Pitty D","key":"bibr16-1460458212473993"},{"key":"bibr17-1460458212473993","unstructured":"Bray T, Paoli J, Sperberg-McQueen CM, Extensible markup language (XML) 1.0. World Wide Web Consortium (W3C). 2000, 60 pp. http:\/\/www.w3.org\/TR\/2000\/REC-xml-20001006 (accessed March 2012)."},{"first-page":"635","volume-title":"Proceedings\/AMIA annual fall symposium","author":"Dolin RH","key":"bibr18-1460458212473993"},{"key":"bibr19-1460458212473993","doi-asserted-by":"publisher","DOI":"10.1016\/S1386-5056(00)00116-7"},{"key":"bibr20-1460458212473993","unstructured":"The LinkEHR Normalization Platform. http:\/\/www.linkehr.com\/ (accessed September 2010)."},{"key":"bibr21-1460458212473993","unstructured":"W3C. XML schema requirements, February 1999, http:\/\/www.w3.org\/TR\/1999\/NOTE-xml-schema-req-19990215 (accessed May 2012)."},{"key":"bibr22-1460458212473993","unstructured":"W3C. XML schema, http:\/\/www.w3.org\/XML\/Schema (accessed May 2012)."},{"key":"bibr23-1460458212473993","unstructured":"ISO\/IEC 19757-3:2006. Information technology \u2013 Document Schema Definition Languages (DSDL) \u2013 part 3: rule-based validation \u2013 Schematron."},{"key":"bibr24-1460458212473993","unstructured":"SESAME. SESAME: SEnsing for Sport And Managed Exercise. http:\/\/www.sesame.ucl.ac.uk\/ (accessed September 2010)."},{"key":"bibr25-1460458212473993","doi-asserted-by":"publisher","DOI":"10.1260\/2040-2295.2.2.143"},{"key":"bibr26-1460458212473993","unstructured":"Sun Microsystems. Java 2 Platform Standard Edition (J2SE), http:\/\/www.oracle.com\/technetwork\/java\/javase\/overview\/index.html (accessed March 2012)."},{"key":"bibr27-1460458212473993","unstructured":"Sun Microsystems. Project JAXB Reference Implementation, http:\/\/jaxb.java.net\/ (accessed March 2010)."},{"key":"bibr28-1460458212473993","unstructured":"Microsoft. Microsoft Visual Studio, http:\/\/www.microsoft.com\/visualstudio (accessed March 2012)."},{"key":"bibr29-1460458212473993","unstructured":"Oracle. NetBeans, http:\/\/netbeans.org (accessed March 2012)."},{"key":"bibr30-1460458212473993","unstructured":"The World Wide Web Consortium. XML schema checking service, http:\/\/www.w3.org\/2001\/03\/webdata\/xsv (2007, accessed March 2012)."},{"key":"bibr31-1460458212473993","unstructured":"DD CEN\/TS 14796:2004. Health informatics. Data types."},{"key":"bibr32-1460458212473993","doi-asserted-by":"publisher","DOI":"10.1007\/s10916-012-9837-z"},{"key":"bibr33-1460458212473993","unstructured":"PostgreSQL Global Development Group. About PostgreSQL, http:\/\/www.postgresql.org\/ (accessed March 2012)."},{"key":"bibr34-1460458212473993","unstructured":"Object Management Group, Inc. Unified Modeling Language, http:\/\/www.uml.org\/ (accessed March 2012)."},{"key":"bibr35-1460458212473993","unstructured":"No Magic, Inc. Introducing MagicDraw, https:\/\/www.magicdraw.com\/what (accessed March 2012)."},{"isbn-type":"print","volume-title":"Eiffel: the language (Prentice Hall object-oriented series)","year":"1991","author":"Meyer B","key":"bibr36-1460458212473993","ISBN":"http:\/\/id.crossref.org\/isbn\/0132479257"},{"key":"bibr37-1460458212473993","unstructured":"W3C. SOAP version 1.2 part 1: messaging framework (second edition). W3C Recommendation, 2007, http:\/\/www.w3.org\/TR\/soap12-part1\/ (accessed March 2012)."},{"key":"bibr38-1460458212473993","unstructured":"W3C. RDF working group. Resource Description Framework (RDF), http:\/\/www.w3.org\/RDF\/ (2004, accessed March 2012)."},{"key":"bibr39-1460458212473993","unstructured":"W3C. SPARQL Query Language for RDF. W3C Recommendation, 2008, http:\/\/www.w3.org\/TR\/rdf-sparql-query (accessed March 2012)."},{"key":"bibr40-1460458212473993","unstructured":"ISO\/IEC 5218:2004. Information technology \u2013 codes for the representation of human sexes."},{"key":"bibr41-1460458212473993","unstructured":"ISO\/TS 22220:2009. Health informatics \u2013 identification of subjects of health care."},{"key":"bibr42-1460458212473993","unstructured":"ISO\/IEC 6523-1:1998. Information technology \u2013 structure for the identification of organizations and organization parts \u2013 part 1: identification of organization identification schemes."},{"key":"bibr43-1460458212473993","unstructured":"ISO\/IEC 19770-2:2009. Information technology \u2013 software asset management \u2013 part 2: software identification tag."},{"key":"bibr44-1460458212473993","unstructured":"Yahoo! Inc. Flickr from YAHOO! http:\/\/www.flickr.com\/ (accessed March 2012)."}],"container-title":["Health Informatics Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1460458212473993","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1460458212473993","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1460458212473993","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,16]],"date-time":"2024-09-16T01:02:59Z","timestamp":1726448579000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1460458212473993"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,8,30]]},"references-count":44,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2013,12]]}},"alternative-id":["10.1177\/1460458212473993"],"URL":"https:\/\/doi.org\/10.1177\/1460458212473993","relation":{},"ISSN":["1460-4582","1741-2811"],"issn-type":[{"type":"print","value":"1460-4582"},{"type":"electronic","value":"1741-2811"}],"subject":[],"published":{"date-parts":[[2013,8,30]]}}}