{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,9,27]],"date-time":"2024-09-27T04:32:39Z","timestamp":1727411559256},"reference-count":50,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2024,3,1]],"date-time":"2024-03-01T00:00:00Z","timestamp":1709251200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,3,1]],"date-time":"2024-03-01T00:00:00Z","timestamp":1709251200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,1,2]],"date-time":"2024-01-02T00:00:00Z","timestamp":1704153600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100008487","name":"Sosiaali- ja Terveysministeri\u00f6","doi-asserted-by":"publisher","award":["414919001"],"id":[{"id":"10.13039\/501100008487","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.fr","clinicalkey.jp","clinicalkey.es","clinicalkey.com.au","clinicalkey.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["International Journal of Medical Informatics"],"published-print":{"date-parts":[[2024,3]]},"DOI":"10.1016\/j.ijmedinf.2023.105336","type":"journal-article","created":{"date-parts":[[2024,1,5]],"date-time":"2024-01-05T04:15:20Z","timestamp":1704428120000},"page":"105336","update-policy":"http:\/\/dx.doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":3,"special_numbering":"C","title":["Privacy concerns among the users of a national patient portal: A cross-sectional population survey study"],"prefix":"10.1016","volume":"183","author":[{"ORCID":"http:\/\/orcid.org\/0000-0001-7609-0370","authenticated-orcid":false,"given":"Maiju","family":"Kyyts\u00f6nen","sequence":"first","affiliation":[]},{"ORCID":"http:\/\/orcid.org\/0000-0002-0034-8379","authenticated-orcid":false,"given":"Tuulikki","family":"Vehko","sequence":"additional","affiliation":[]},{"given":"Virpi","family":"Jylh\u00e4","sequence":"additional","affiliation":[]},{"ORCID":"http:\/\/orcid.org\/0000-0002-3610-3998","authenticated-orcid":false,"given":"Ulla-Mari","family":"Kinnunen","sequence":"additional","affiliation":[]}],"member":"78","reference":[{"key":"10.1016\/j.ijmedinf.2023.105336_b0005","unstructured":"Act on the Electronic Processing of Client Data in Healthcare and Social Welfare, 703 (2023). https:\/\/www.finlex.fi\/fi\/laki\/alkup\/2023\/20230703."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0010","unstructured":"Act on the Secondary Use of Data, 552 (2019). https:\/\/www.finlex.fi\/fi\/laki\/alkup\/2019\/20190552."},{"issue":"18","key":"10.1016\/j.ijmedinf.2023.105336_b0015","article-title":"Contact tracing apps for the COVID-19 pandemic: a systematic literature review of challenges and future directions for neo-liberal societies","volume":"9","author":"Akinbi","year":"2021","journal-title":"Health Inf Sci Syst"},{"issue":"12","key":"10.1016\/j.ijmedinf.2023.105336_b0020","doi-asserted-by":"crossref","first-page":"e10954","DOI":"10.2196\/10954","article-title":"Enhancing privacy controls for patients via a selective authentic electronic health record exchange service: Qualitative study of perspectives by medical professionals and patients","volume":"20","author":"Alaqra","year":"2018","journal-title":"J. Med. Internet Res."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0025","doi-asserted-by":"crossref","first-page":"73","DOI":"10.2147\/JMDH.S183275","article-title":"Assessing staff awareness and effectiveness of educational training on IT security and privacy in a large healthcare organization","volume":"12","author":"Arain","year":"2019","journal-title":"J. Multidiscip. Healthc."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0030","unstructured":"Artificial Intelligence Act Proposal of 2021, article 52., section 1. https:\/\/eur-lex.europa.eu\/legal-content\/EN\/TXT\/?uri=celex%3A52021PC0206."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0035","doi-asserted-by":"crossref","first-page":"223","DOI":"10.1016\/j.chb.2019.08.025","article-title":"Abandonment of personal quantification: A review and empirical study investigating reasons for wearable activity tracking attrition","volume":"102","author":"Attig","year":"2020","journal-title":"Comput. Hum. Behav."},{"issue":"2","key":"10.1016\/j.ijmedinf.2023.105336_b0040","doi-asserted-by":"crossref","first-page":"218","DOI":"10.1111\/inr.12585","article-title":"Privacy, confidentiality, security and patient safety concerns about electronic health records","volume":"67","author":"Bani Issa","year":"2020","journal-title":"Int. Nurs. Rev."},{"issue":"1","key":"10.1016\/j.ijmedinf.2023.105336_b0045","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1111\/jcom.12276","article-title":"Online privacy concerns and privacy management: A meta-analytical review","volume":"67","author":"Baruh","year":"2017","journal-title":"J. Commun."},{"issue":"1","key":"10.1016\/j.ijmedinf.2023.105336_b0050","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1186\/s12910-022-00758-z","article-title":"Trust and digital privacy in healthcare: a cross-sectional descriptive study of trust and attitudes towards uses of electronic health data among the general public in Sweden","volume":"23","author":"Belfrage","year":"2022","journal-title":"BMC Med. Ethics"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0055","doi-asserted-by":"crossref","first-page":"e41635","DOI":"10.2196\/41635","article-title":"Trust and health information exchanges: Qualitative analysis of the intent to share personal health information","volume":"25","author":"Busch-Casler","year":"2023","journal-title":"J. Med. Internet Res."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0060","first-page":"356","article-title":"Patients' experiences of unwanted access to their online health records","volume":"302","author":"B\u00e4rk\u00e5s","year":"2023","journal-title":"Stud. Health Technol. Inform."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0065","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2021.114146","article-title":"Do personal health concerns and trust in healthcare providers mitigate privacy concerns? Effects on patients' intention to share personal health data on electronic health records","volume":"283","author":"Cherif","year":"2021","journal-title":"Soc Sci Med"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0070","unstructured":"Christiansen, T. & Rudkj\u00f8bing, A. (2015). Deletion of the Danish General Practice Database (DAMD). European Observatory, Country update. January 26th 2015. Referred to on September 27th 2023. https:\/\/eurohealthobservatory.who.int\/monitors\/health-systems-monitor\/updates\/hspm\/denmark-2012\/deletion-of-the-danish-general-practice-database-(damd)."},{"issue":"2","key":"10.1016\/j.ijmedinf.2023.105336_b0075","doi-asserted-by":"crossref","first-page":"e19594","DOI":"10.2196\/19594","article-title":"Privacy concerns about health information disclosure in mobile health: Questionnaire study investigating the moderation effect of social support","volume":"9","author":"Dang","year":"2021","journal-title":"JMIR Mhealth Uhealth"},{"issue":"10","key":"10.1016\/j.ijmedinf.2023.105336_b0080","doi-asserted-by":"crossref","first-page":"3122","DOI":"10.1007\/s11606-020-05998-6","article-title":"Patients' perceptions about medical record privacy and security: implications for withholding of information during the COVID-19 pandemic","volume":"35","author":"DePuccio","year":"2020","journal-title":"J. Gen. Intern. Med."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0085","series-title":"Privacy Online","article-title":"Negotiating privacy concerns and social capital needs in a social media environment","author":"Ellison","year":"2011"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0090","unstructured":"European Parliament (2023). Artificial Intelligence Act: deal on comprehensive rules for trustworthy AI. Press release. December 9th 2023. Referred to on December 18th 2023. https:\/\/www.europarl.europa.eu\/news\/en\/press-room\/20231206IPR15699\/artificial-intelligence-act-deal-on-comprehensive-rules-for-trustworthy-ai."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0095","doi-asserted-by":"crossref","first-page":"226","DOI":"10.1016\/j.cose.2018.04.002","article-title":"Explaining the privacy paradox: A systematic review of literature investigating privacy attitude and behavior","volume":"77","author":"Gerber","year":"2018","journal-title":"Comput. Secur."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0100","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.jbi.2014.07.010","article-title":"Informatics methods in medical privacy","volume":"50","author":"Gkoulalas-Divanis","year":"2014","journal-title":"J. Biomed. Inform."},{"issue":"10","key":"10.1016\/j.ijmedinf.2023.105336_b0105","doi-asserted-by":"crossref","first-page":"e359","DOI":"10.2196\/jmir.8614","article-title":"Veterans\u2019 preferences for exchanging information using veterans affairs health information technologies: Focus group results and modeling simulations","volume":"19","author":"Haun","year":"2017","journal-title":"J Med Internet Res"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0110","doi-asserted-by":"crossref","first-page":"e35","DOI":"10.1136\/medethics-2019-105887","article-title":"Control, trust and the sharing of health information: the limits of trust","volume":"47","author":"Holm","year":"2021","journal-title":"J. Med. Ethics"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0115","doi-asserted-by":"crossref","first-page":"1073756","DOI":"10.3389\/fpubh.2022.1073756","article-title":"Acceptance of digital health services among older adults: Findings on perceived usefulness, self-efficacy, privacy concerns, ICT knowledge, and support seeking","volume":"10","author":"Jokisch","year":"2022","journal-title":"Front. Public Health"},{"issue":"1","key":"10.1016\/j.ijmedinf.2023.105336_b0120","doi-asserted-by":"crossref","first-page":"714","DOI":"10.1186\/s12913-023-09730-y","article-title":"The effects of digitalisation on health and social care work: a qualitative descriptive study of the perceptions of professionals and managers","volume":"23","author":"Kaihlanen","year":"2023","journal-title":"BMC Health Serv. Res."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0125","series-title":"In AMCIS 2011 Proceedings, Paper 101","article-title":"A new social order: Mechanisms for social network site boundary regulation","author":"Karr-Wisniewski","year":"2011"},{"issue":"10","key":"10.1016\/j.ijmedinf.2023.105336_b0130","doi-asserted-by":"crossref","first-page":"1440","DOI":"10.1089\/tmj.2021.0603","article-title":"Privacy Concerns and Continued Use Intention of Telemedicine During COVID-19","volume":"28","author":"Kato-Lin","year":"2022","journal-title":"Telemedicine Journal and e-Health : the Official Journal of the American Telemedicine Association"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0135","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1016\/j.cmpb.2017.10.008","article-title":"The usefulness and actual use of wearable devices among the elderly population","volume":"153","author":"Kekade","year":"2018","journal-title":"Comput. Methods Programs Biomed."},{"issue":"4","key":"10.1016\/j.ijmedinf.2023.105336_b0140","doi-asserted-by":"crossref","DOI":"10.2196\/jmir.9014","article-title":"The effectiveness of health care information technologies: Evaluation of trust, security beliefs, and privacy as determinants of health care outcomes","volume":"20","author":"Kisekka","year":"2018","journal-title":"J. Med. Internet Res."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0145","doi-asserted-by":"crossref","first-page":"122","DOI":"10.1016\/j.cose.2015.07.002","article-title":"Privacy attitudes and privacy behaviour: A review of current research on the privacy paradox phenomenon","volume":"64","author":"Kokolakis","year":"2017","journal-title":"Comput. Secur."},{"issue":"8","key":"10.1016\/j.ijmedinf.2023.105336_b0150","doi-asserted-by":"crossref","first-page":"e20359","DOI":"10.2196\/20359","article-title":"Utilization barriers and medical outcomes commensurate with the use of telehealth among older adults: Systematic review","volume":"8","author":"Kruse","year":"2020","journal-title":"JMIR Med Inform"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0155","unstructured":"Kyyts\u00f6nen, M. & Vehko, T. (2022). Citizens\u2019 experiences of health and social e-services. In T. Vehko (Ed.), E-health and e-welfare of Finland: Check Point 2022 (p. 173-183). Finnish Institute for Health and Welfare, report 6\/2022. https:\/\/urn.fi\/URN:ISBN:978-952-343-891-0."},{"issue":"2","key":"10.1016\/j.ijmedinf.2023.105336_b0160","doi-asserted-by":"crossref","first-page":"258","DOI":"10.17645\/mac.v8i2.2855","article-title":"How online privacy literacy supports self-data protection and self-determination in the age of information","volume":"8","author":"Masur","year":"2020","journal-title":"Media Commun."},{"issue":"07","key":"10.1016\/j.ijmedinf.2023.105336_b0165","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1109\/MC.2021.3074263","article-title":"The ten commandments of ethical medical AI","volume":"54","author":"M\u00fcller","year":"2021","journal-title":"Computer"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0170","unstructured":"Nissenbaum, H. (2004). Privacy as Contextual Integrity. Symposium, Privacy as Contextual Integrity, 79 Wash. L. Rev. 119. https:\/\/digitalcommons.law.uw.edu\/wlr\/vol79\/iss1\/10."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0175","doi-asserted-by":"crossref","DOI":"10.1016\/j.ijmedinf.2023.105193","article-title":"Factors affecting patient and public perceptions of the adoption of electronic health record sharing: A Hong Kong study","volume":"178","author":"Ong","year":"2023","journal-title":"Int. J. Med. Inf."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0180","series-title":"Finnish Institute for Health and Welfare, Statistical Report 16\/2021","article-title":"The adult population\u2019s well-being, health and services \u2013 FinSote 2020, Regional differences in the service experiences and well-being of adults","author":"Parikka","year":"2021"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0185","unstructured":"R Core Team (2022). R: A language and environment for statistical computing. R Foundation for Statistical Computing, Vienna, Austria. https:\/\/www.R-project.org\/."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0190","unstructured":"Regional Committee for Europe, 72nd session. (2022). Seventy-second Regional Committee for Europe: Tel Aviv, 12\u201314 September 2022: Regional digital health action plan for the WHO European Region 2023\u20132030. World Health Organization. Regional Office for Europe. https:\/\/apps.who.int\/iris\/handle\/10665\/360950."},{"issue":"3","key":"10.1016\/j.ijmedinf.2023.105336_b0195","doi-asserted-by":"crossref","first-page":"283","DOI":"10.23996\/fjhw.109778","article-title":"Finnish e-health services intended for citizens \u2013 national and regional development","volume":"13","author":"Ruotanen","year":"2021","journal-title":"Finnish Journal of EHealth and EWelfare"},{"issue":"4","key":"10.1016\/j.ijmedinf.2023.105336_b0200","doi-asserted-by":"crossref","first-page":"e38","DOI":"10.2196\/medinform.8092","article-title":"Patient portal use and experience among older adults: Systematic review","volume":"5","author":"Sakaguchi-Tang","year":"2017","journal-title":"JMIR Med. Inform."},{"key":"10.1016\/j.ijmedinf.2023.105336_b0205","doi-asserted-by":"crossref","first-page":"e45974","DOI":"10.2196\/45974","article-title":"Patients\u2019 experiences of a national patient portal and its usability: Cross-sectional survey study","volume":"25","author":"Simola","year":"2023","journal-title":"J Med Internet Res"},{"issue":"6","key":"10.1016\/j.ijmedinf.2023.105336_b0210","doi-asserted-by":"crossref","first-page":"564","DOI":"10.1016\/j.healthpol.2019.03.012","article-title":"A review of attitudes towards the reuse of health data among people in the European Union: The primacy of purpose and the common good","volume":"123","author":"Skovgaard","year":"2019","journal-title":"Health Policy (amsterdam, Netherlands)"},{"issue":"11","key":"10.1016\/j.ijmedinf.2023.105336_b0215","doi-asserted-by":"crossref","first-page":"34","DOI":"10.1145\/3458652","article-title":"Medical artificial intelligence: the European legal perspective","volume":"64","author":"St\u00f6ger","year":"2021","journal-title":"In Communications of the ACM"},{"key":"10.1016\/j.ijmedinf.2023.105336_b0220","doi-asserted-by":"crossref","DOI":"10.1016\/j.ijmedinf.2023.104994","article-title":"Digital contact tracing during the COVID-19 pandemic in france: Associated factors and reasons for non-use","volume":"171","author":"Touzani","year":"2023","journal-title":"Int. J. Med. Inf."},{"issue":"1","key":"10.1016\/j.ijmedinf.2023.105336_b0225","doi-asserted-by":"crossref","DOI":"10.1177\/2053951720907107","article-title":"The Nordic data imaginary","volume":"7","author":"Tupasela","year":"2020","journal-title":"Big Data Soc."},{"issue":"6","key":"10.1016\/j.ijmedinf.2023.105336_b0230","doi-asserted-by":"crossref","first-page":"804","DOI":"10.1080\/1369118X.2015.1078834","article-title":"Development and validation of the Internet Skills Scale (ISS)","volume":"19","author":"van Deursen","year":"2016","journal-title":"Inf. Commun. Soc."},{"issue":"7","key":"10.1016\/j.ijmedinf.2023.105336_b0235","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1080\/15265161.2022.2075975","article-title":"Data, privacy, and agency: Beyond transparency to empowerment","volume":"22","author":"Versalovic","year":"2022","journal-title":"The American Journal of Bioethics : AJOB"},{"issue":"2","key":"10.1016\/j.ijmedinf.2023.105336_b0240","doi-asserted-by":"crossref","first-page":"282","DOI":"10.1057\/s41292-021-00269-x","article-title":"The life and death of confidentiality: a historical analysis of the flows of patient information","volume":"18","author":"Wadmann","year":"2023","journal-title":"BioSocieties"},{"issue":"1","key":"10.1016\/j.ijmedinf.2023.105336_b0245","doi-asserted-by":"crossref","first-page":"e3","DOI":"10.2196\/ijmr.4447","article-title":"Using ehealth technologies: Interests, preferences, and concerns of older adults","volume":"6","author":"Ware","year":"2017","journal-title":"Interactive Journal of Medical Research"},{"issue":"10","key":"10.1016\/j.ijmedinf.2023.105336_b0250","article-title":"Framing and measuring multi-dimensional interpersonal privacy preferences of social networking site users","volume":"38","author":"Wisniewski","year":"2016","journal-title":"Commun. Assoc. Inf. Syst."}],"container-title":["International Journal of Medical Informatics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1386505623003544?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1386505623003544?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,9,26]],"date-time":"2024-09-26T18:58:19Z","timestamp":1727377099000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1386505623003544"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,3]]},"references-count":50,"alternative-id":["S1386505623003544"],"URL":"https:\/\/doi.org\/10.1016\/j.ijmedinf.2023.105336","relation":{},"ISSN":["1386-5056"],"issn-type":[{"type":"print","value":"1386-5056"}],"subject":[],"published":{"date-parts":[[2024,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Privacy concerns among the users of a national patient portal: A cross-sectional population survey study","name":"articletitle","label":"Article Title"},{"value":"International Journal of Medical Informatics","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ijmedinf.2023.105336","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 The Author(s). Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"105336"}}